WEBVTT

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[MUSIC - NAKIA MAGAZINE,
\"A DISTANT VOICE\"]

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They don\'t see Alzheimer\'s
as being Alzheimer\'s.

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They see it as being
a mental problem.

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It is a thief.

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It\'s a robber.

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It\'s a slow moving thief who
manages to get away from you

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every time.

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A light bulb slowly going dim.

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That\'s exactly what it is.

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It\'s a slow death.

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Alzheimer\'s disease occurs
14% to 100% more often in

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African-Americans than it
does in Caucasians.

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There are several discrete
steps of Alzheimer\'s.

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And first you begin to notice
a loved one forgetting.

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Our mother was repeating herself
a lot, and she was

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forgetting about things that
had just happened.

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And then in the third stage,
one gets even worse.

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One might forget loved ones.

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When my mom forgot me, she
was looking right at me.

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I had went to pick her up one
day to just go get ice cream

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with my daughter\'s with me.

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And she looked at me and said,
don\'t you think Cadalia would

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want to go with us?

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One might become even more
combative, agitated.

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He started fighting me.

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And we ended up going
to the hospital.

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When we first see signs
and symptoms, it

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is time to be concerned.

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It\'s time to go to the doctor,
because there are specific

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tests that are done, so that the
doctor can sort of pretty

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much see where you are
along that spectrum.

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The other battle we face
is a lot of people

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come, and we get denial.

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This is the Super Bowl, and
that\'s the Hall of Fame.

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And a neighbor told me he
thought John had Alzheimer\'s,

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and I almost got angry
with the neighbor.

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I was in a state of denial
as far as what was

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going on with my dad.

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And even my mom, a nurse
40 plus years, she was

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in a state of denial.

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There was a deniability factor,
but I could see the

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light going out in her eyes.

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Hi I really saw that.

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And that was when we were
out to an affair,

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and she took a picture.

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And I could see, just from that
picture, that the light

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was going out in her eyes.

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It\'s a journey.

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It\'s a day-to-day struggle
from time to time.

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And it\'s very hurtful when you
lose a good companion, good

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friend, somebody who walks
along with you.

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It\'s very hurtful.

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It\'s been ups and downs
and a learning curve.

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And it\'s been rather
lonesome at times.

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I miss her byplay, her good
conversation, and her ability

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to laugh with me.

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How are you feeling today?

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Feeling good?

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Hi, you look good.

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Yes, you do.

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You look good, sweetheart.

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At the beginning,
you\'re angry.

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You are angry with the person,
and they don\'t know why.

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You don\'t even know why
yourself, because you think

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they\'re doing deliberate.

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What they\'re doing is
deliberate, but it\'s not.

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It\'s good to see you sitting
up this way.

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This was my husband, and I had
said for better or worse, and

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I could take care of him.

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All right, there you
go sweetheart.

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Cleo?

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You don\'t feel like
talking now?

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Yeah, I see you watching
that light.

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And it\'s so funny, I look
back now, my thing

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was I can do this.

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I can take care of him, but it
got to be too much for me.

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It was just a very, very
difficult life.

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But due to the fact that I loved
him, it didn\'t make any

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difference.

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It really didn\'t make
a difference.

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When I think about it now, I get
kind of welled up, because

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I do miss him.

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And just the fact that he had
that disease, it\'s such a

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debilitating disease, just
changes your whole life.

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But you learn to live with it.

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You learn to respect them for
who they are, and then you

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remember the good days.

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It deteriorates those senior
members of families, those

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patriarchs and matriarchs that
have given guidance for years,

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that have given stability
to family.

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It does that in a very
deleterious way that

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ultimately affects
our community

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and our larger society.

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Yesterday was your birthday.

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What did you do on
your birthday?

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Yeah.

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Hugh?

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Yeah.

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Yeah, what did you do
on your birthday?

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Anybody come by to see you?

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Yeah.

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Who came by to see you?

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Aunt [INAUDIBLE].

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Aunt [INAUDIBLE]?

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Being the son trying to take
care of my dad when sometimes,

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the other role should be my dad
taking care of me, and the

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roles are reversed.

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To see your dad from a person
who was a deacon in the

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church, a principal, assistant
principal, and all of a

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sudden, you see him go
down and you see

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that daily every day.

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Deep down in the brain the
connections should be all sort

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of gray like that.

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Here the brain folds, and
they\'re all whitish.

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There\'s a little bit of
shrinkage, but not much.

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But right in through here,
there\'s a lot of just wear and

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tear change.

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These are vascular changes.

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I, for example, show them the
brain scan, and I say this is

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how it looks.

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And here\'s what we\'re going
to be doing battle with.

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Alzheimer\'s disease certainly
is treatable.

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Today, Alzheimer\'s disease is
not curable, and that is to

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say that we don\'t have any
inoculation and/or medications

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that actually prevent and/or
erase and eliminate the

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disease once it\'s diagnosed.

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I personally believe it\'s very
basic, but we see it not done,

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is nutritional support,
being sure the

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person\'s eating right.

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That high blood pressure,
diabetes, vascular risk

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factors are dealt with.

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The biggie thing that, also, we
see under done, and it\'s a

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huge problem in our current
health care system, is

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prevention of heart disease
risk and cardiovascular

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vascular risk.

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So that we commonly,
unfortunately, see people

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whose cholesterol\'s in bad
shape, whose blood pressure

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may not be in good shape,
who are diabetic.

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This is very, very common
African-American community.

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It\'s also common in the
other populations.

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And for one person you could
say, hypertensive no problem,

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but if you are having a memory
problem with Alzheimer\'s, then

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this is something that\'s
going to collide and

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cause further problems.

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Mr. Patterford?

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Yes.

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It\'s good to see you again.

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It\'s been a little while.

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We\'re both getting older.

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Yeah.

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Yeah.

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And when I see a patient, I
basically say to the family,

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the big three\'s that we\'re going
to look at are Alzheimer

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type of dementia, vascular
dementia,

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and nutritional dementias.

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And many times there\'s going to
be a combination of these

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together, so that the patient
and family begin to recognize,

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look, this could really be
multiple factors coming

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together to cause illness.

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God will take him in his time,
but in the meantime, we\'re

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just going to try to
keep everything as

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good as it can be.

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Some diseases are more common
in different ethnic groups,

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because of, again, their genetic
makeup, and also

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because of environmental factors
that are associated

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with a given disease.

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When someone says this disease
runs in his or her family,

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what it means is that there\'s
a genetic history that it is

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inherited, that some
gene or some form

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of a gene is inherited.

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I\'ve thought about genetics.

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I\'ve thought about the genetics
of the [INAUDIBLE],

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and the way things have
ran in our family.

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And she has a cousin, a first
cousin, who is only a younger

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than her who has been suffering
for quite some time.

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But I don\'t know if
that\'s abnormal.

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It may be common.

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That doesn\'t make it normal.

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So what we try to fight is if,
indeed, this is epidemic and a

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lot of people are getting
abnormal brain aging, just

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because you see a lot
of it around you

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doesn\'t make it normal.

00:09:55.160 --> 00:09:58.800 align:middle line:84%
I think with my family, with
both my father and my mother,

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and because they have brothers
and sisters with the disease,

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I know that in our instances
that it is hereditary in our

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family, but I just say I\'m
not going to be the one.

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So I don\'t think of it.

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I couldn\'t do that.

00:10:18.810 --> 00:10:20.720 align:middle line:84%
I couldn\'t focus on
that, of course.

00:10:20.720 --> 00:10:24.080 align:middle line:84%
My children and stuff always
tease me, because I\'ll forget

00:10:24.080 --> 00:10:26.320 align:middle line:84%
where my keys is, or I\'ll forget
what I\'m saying, and

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they\'ll be looking like,
oh Lord, here we go.

00:10:29.720 --> 00:10:32.670 align:middle line:90%
but I don\'t focus on that.

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If it happens, it happens, but
I am not claiming that.

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What this research will begin
to do is help people to

00:10:39.110 --> 00:10:43.990 align:middle line:84%
understand that if we can
somehow understand the biology

00:10:43.990 --> 00:10:48.000 align:middle line:84%
behind this disease, that
perhaps in some way, we can

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help them to help prevent the
next generation of persons

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from getting Alzheimer\'s
disease.

00:10:55.210 --> 00:10:58.850 align:middle line:84%
It is exceptionally important
that not only individuals, but

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families with Alzheimer\'s
disease began to participate

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in research.

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We recognize that there are
environmental factors.

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There are social factors.

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There are biological factors.

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And there are genetic factors
that ultimately contribute in

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a very unique way to
the development

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of Alzheimer\'s disease.

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Since 2003 when we began this
project, we have made

00:11:21.310 --> 00:11:25.660 align:middle line:84%
significant progress with our
ascertainment, with our

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recruitment.

00:11:26.910 --> 00:11:31.810 align:middle line:90%


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That\'s Super Bowl five.

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Right.

00:11:35.390 --> 00:11:37.450 align:middle line:84%
When I beat the Dallas
Cowboys.

00:11:37.450 --> 00:11:39.830 align:middle line:84%
I\'d be screaming and yelling
at John about when are you

00:11:39.830 --> 00:11:40.530 align:middle line:90%
going to get a job?

00:11:40.530 --> 00:11:42.370 align:middle line:84%
When are you going to realize
we need health insurance.

00:11:42.370 --> 00:11:43.850 align:middle line:90%
We need this and that.

00:11:43.850 --> 00:11:46.030 align:middle line:84%
And then I thought, he\'s
not going to do it.

00:11:46.030 --> 00:11:48.860 align:middle line:90%


00:11:48.860 --> 00:11:52.680 align:middle line:84%
And I said one of us has to go
to work for a big corporation

00:11:52.680 --> 00:11:54.850 align:middle line:84%
where we have health
insurance.

00:11:54.850 --> 00:12:00.060 align:middle line:84%
Because the most frightening
thing before this was, am I

00:12:00.060 --> 00:12:04.560 align:middle line:84%
going to dwindle all of my
savings down to nothing?

00:12:04.560 --> 00:12:09.430 align:middle line:84%
And then I have to lose my
house, after the savings are

00:12:09.430 --> 00:12:13.030 align:middle line:90%
gone because of this.

00:12:13.030 --> 00:12:14.110 align:middle line:90%
Is the car downstairs?

00:12:14.110 --> 00:12:15.300 align:middle line:90%
Yes, the car\'s downstairs.

00:12:15.300 --> 00:12:16.460 align:middle line:90%
Let\'s go get in it.

00:12:16.460 --> 00:12:16.995 align:middle line:90%
OK.

00:12:16.995 --> 00:12:18.290 align:middle line:90%
And take a ride.

00:12:18.290 --> 00:12:21.490 align:middle line:84%
I cut my living expenses
in half.

00:12:21.490 --> 00:12:26.820 align:middle line:84%
I saw that staying in California
would drain me.

00:12:26.820 --> 00:12:29.890 align:middle line:84%
Then, when I moved to Baltimore,
I saw that the

00:12:29.890 --> 00:12:35.860 align:middle line:84%
long-term part of this disease
would totally drain me.

00:12:35.860 --> 00:12:40.090 align:middle line:84%
Get good financial advice,
because this can be a long,

00:12:40.090 --> 00:12:41.470 align:middle line:90%
long disease.

00:12:41.470 --> 00:12:49.010 align:middle line:84%
And making your assets last
as long as you can.

00:12:49.010 --> 00:12:54.150 align:middle line:84%
When my mother passed in May,
and I was going to make a

00:12:54.150 --> 00:12:58.785 align:middle line:84%
decision to try to sell the
house, it was rough, because

00:12:58.785 --> 00:13:01.650 align:middle line:84%
that\'s the only house
I grew up in.

00:13:01.650 --> 00:13:06.650 align:middle line:84%
I would really love to have kept
the house, but it is a

00:13:06.650 --> 00:13:08.070 align:middle line:90%
financial burden.

00:13:08.070 --> 00:13:09.420 align:middle line:90%
I have two mortgages.

00:13:09.420 --> 00:13:14.090 align:middle line:84%
I\'m paying two light bills,
two gas bills.

00:13:14.090 --> 00:13:21.710 align:middle line:84%
And the savings I did have is
dwindling, because my dad does

00:13:21.710 --> 00:13:26.160 align:middle line:84%
get Medicare, and he has not
a lot of retirement, but it

00:13:26.160 --> 00:13:29.000 align:middle line:90%
doesn\'t meet the bill.

00:13:29.000 --> 00:13:31.410 align:middle line:84%
And then I have to pay
the difference.

00:13:31.410 --> 00:13:34.170 align:middle line:90%
And I was able to do it.

00:13:34.170 --> 00:13:36.930 align:middle line:84%
I really don\'t have no other
choice but to try to sell the

00:13:36.930 --> 00:13:41.800 align:middle line:84%
house and try to keep quality
of life for my dad going.

00:13:41.800 --> 00:13:43.970 align:middle line:84%
Because I\'m paying Depends,
I\'m doing medicines.

00:13:43.970 --> 00:13:46.660 align:middle line:84%
I\'m doing, you know,
he needs clothes,

00:13:46.660 --> 00:13:50.800 align:middle line:90%
snacks, just common stuff.

00:13:50.800 --> 00:13:53.460 align:middle line:90%


00:13:53.460 --> 00:13:54.880 align:middle line:90%
It\'s a lot of memories.

00:13:54.880 --> 00:13:57.410 align:middle line:84%
I mean a lot of love
was in that house.

00:13:57.410 --> 00:14:00.480 align:middle line:84%
A lot of good things,
a lot of good times.

00:14:00.480 --> 00:14:02.650 align:middle line:84%
You don\'t have the Thanksgiving
dinners or the

00:14:02.650 --> 00:14:06.470 align:middle line:84%
Christmas, and you go by the
house, and you know it\'s

00:14:06.470 --> 00:14:07.720 align:middle line:90%
somebody else\'s house.

00:14:07.720 --> 00:14:10.620 align:middle line:90%


00:14:10.620 --> 00:14:14.210 align:middle line:84%
This happened after we
had both retired.

00:14:14.210 --> 00:14:16.850 align:middle line:84%
I had been retired for quite
some time, and she was

00:14:16.850 --> 00:14:20.090 align:middle line:90%
retiring in 1995.

00:14:20.090 --> 00:14:24.310 align:middle line:84%
Had no inkling of anything like
this going to happen.

00:14:24.310 --> 00:14:30.530 align:middle line:84%
And we were comfortable and well
able to have fun, and go

00:14:30.530 --> 00:14:34.510 align:middle line:84%
and do, and do the things
that we wanted to.

00:14:34.510 --> 00:14:38.270 align:middle line:84%
But as of this time, now our
finances are caught up in

00:14:38.270 --> 00:14:40.680 align:middle line:84%
medicine and day care,
and we\'re still in

00:14:40.680 --> 00:14:43.270 align:middle line:90%
love aren\'t we dear?

00:14:43.270 --> 00:14:44.060 align:middle line:90%
Yes.

00:14:44.060 --> 00:14:47.480 align:middle line:84%
It\'s the burden of medicine,
the burden of day care.

00:14:47.480 --> 00:14:53.080 align:middle line:84%
If she ever has to go into a
nursing home or anything like

00:14:53.080 --> 00:14:56.170 align:middle line:84%
that, it could be
astronomical.

00:14:56.170 --> 00:15:00.920 align:middle line:84%
But just in yearly outlay, I\'m
sure we\'re spending $24,000,

00:15:00.920 --> 00:15:05.280 align:middle line:84%
$25,000 a year just
in gasoline,

00:15:05.280 --> 00:15:07.720 align:middle line:90%
medicine and day care.

00:15:07.720 --> 00:15:11.040 align:middle line:84%
It\'s my duty to take care of
Nadine, and Nadine is well

00:15:11.040 --> 00:15:12.290 align:middle line:90%
worth taking care of.

00:15:12.290 --> 00:15:23.910 align:middle line:90%


00:15:23.910 --> 00:15:29.600 align:middle line:84%
In a support group, it is a
home form where only the

00:15:29.600 --> 00:15:33.630 align:middle line:84%
persons who are affected by
this, as far as being

00:15:33.630 --> 00:15:37.030 align:middle line:84%
caregivers, can really
relate to each other.

00:15:37.030 --> 00:15:39.970 align:middle line:84%
With all the challenges in
your life, sometimes it\'s

00:15:39.970 --> 00:15:41.240 align:middle line:90%
really, really difficult to--

00:15:41.240 --> 00:15:45.740 align:middle line:84%
The programs are designed to
help caregivers to cope.

00:15:45.740 --> 00:15:51.050 align:middle line:84%
And sometimes they are crying,
sometimes they\'re laughing,

00:15:51.050 --> 00:15:56.520 align:middle line:84%
but it is an outlet where they
can share whatever situations

00:15:56.520 --> 00:16:00.560 align:middle line:84%
or challenges they\'re facing
in a confidential setting.

00:16:00.560 --> 00:16:01.830 align:middle line:84%
But then when it\'s
your husband, and

00:16:01.830 --> 00:16:05.090 align:middle line:90%
he\'s my best friend.

00:16:05.090 --> 00:16:09.240 align:middle line:84%
And we always did everything
together.

00:16:09.240 --> 00:16:12.780 align:middle line:84%
But I\'m trying to hold back
these tears and stuff.

00:16:12.780 --> 00:16:15.430 align:middle line:84%
She says I have a daughter
named Sharon,

00:16:15.430 --> 00:16:17.770 align:middle line:90%
and I\'m going yes.

00:16:17.770 --> 00:16:20.740 align:middle line:84%
And then later on,
she got upset.

00:16:20.740 --> 00:16:23.700 align:middle line:84%
I don\'t like to pass out any
information unless I know

00:16:23.700 --> 00:16:29.560 align:middle line:84%
people will sit down, maybe talk
for a few minutes, and

00:16:29.560 --> 00:16:32.560 align:middle line:84%
try to find out how they can get
help with a relative, or

00:16:32.560 --> 00:16:34.310 align:middle line:90%
friend, or someone.

00:16:34.310 --> 00:16:36.322 align:middle line:90%
It\'s kind of tough out there.

00:16:36.322 --> 00:16:42.840 align:middle line:90%


00:16:42.840 --> 00:16:47.260 align:middle line:84%
Going to the support group
was a life saver.

00:16:47.260 --> 00:16:51.150 align:middle line:84%
I probably would be pulling out
my hair by now had I not

00:16:51.150 --> 00:16:55.760 align:middle line:84%
gone, because the first thing I
learned there is it\'s OK to

00:16:55.760 --> 00:17:00.560 align:middle line:84%
laugh at the stuff that
my parents did.

00:17:00.560 --> 00:17:01.680 align:middle line:90%
Because it would be funny.

00:17:01.680 --> 00:17:06.900 align:middle line:84%
I mean, they\'d do some crazy
stuff, because it\'s just--

00:17:06.900 --> 00:17:09.109 align:middle line:84%
I don\'t know what it is, they
just do crazy stuff.

00:17:09.109 --> 00:17:11.980 align:middle line:84%
And I used to call my sister and
say, girl, guess what your

00:17:11.980 --> 00:17:12.510 align:middle line:90%
mom did today?

00:17:12.510 --> 00:17:18.230 align:middle line:84%
And we\'d have to laugh, and we
know that it was OK too laugh.

00:17:18.230 --> 00:17:20.609 align:middle line:84%
Because, at first, we didn\'t
know that you could actually

00:17:20.609 --> 00:17:23.599 align:middle line:84%
laugh at it, because then
you were holding

00:17:23.599 --> 00:17:25.710 align:middle line:90%
all this stuff in.

00:17:25.710 --> 00:17:30.250 align:middle line:84%
So it\'s just a release to
be able to laugh at it.

00:17:30.250 --> 00:17:35.470 align:middle line:84%
Some things, it\'s better to have
humor then to antagonize

00:17:35.470 --> 00:17:36.900 align:middle line:90%
the person.

00:17:36.900 --> 00:17:41.130 align:middle line:84%
And you have to pick your
battles with people rather

00:17:41.130 --> 00:17:43.590 align:middle line:84%
than argue with them and
fight with them.

00:17:43.590 --> 00:17:46.620 align:middle line:84%
If a person who has Alzheimer\'s
or some type of

00:17:46.620 --> 00:17:50.450 align:middle line:84%
memory loss is arguing with
you, and they want to say

00:17:50.450 --> 00:17:55.130 align:middle line:84%
today is Wednesday, and you know
today is Saturday, well,

00:17:55.130 --> 00:17:56.670 align:middle line:90%
to say, OK, it\'s Wednesday.

00:17:56.670 --> 00:17:58.100 align:middle line:90%
It\'s not hurting anything.

00:17:58.100 --> 00:18:00.080 align:middle line:90%
Nobody was hurt from that.

00:18:00.080 --> 00:18:02.490 align:middle line:84%
You say, OK, and just
give them a big hug.

00:18:02.490 --> 00:18:04.400 align:middle line:90%
We need to be educated more.

00:18:04.400 --> 00:18:06.580 align:middle line:84%
We need to know a lot
more about it.

00:18:06.580 --> 00:18:09.970 align:middle line:84%
And trying to get people to
go to support groups.

00:18:09.970 --> 00:18:12.740 align:middle line:84%
They have the help line
where people can call.

00:18:12.740 --> 00:18:15.730 align:middle line:84%
That\'s important for them, so
we can just learn more about

00:18:15.730 --> 00:18:17.270 align:middle line:90%
it knowing what to do.

00:18:17.270 --> 00:18:22.870 align:middle line:90%


00:18:22.870 --> 00:18:28.710 align:middle line:84%
Family members need the
education to know what this

00:18:28.710 --> 00:18:29.970 align:middle line:90%
illness looks like.

00:18:29.970 --> 00:18:35.140 align:middle line:84%
I never even thought about
Alzheimer\'s or dementia until

00:18:35.140 --> 00:18:39.390 align:middle line:90%
it hit home with us.

00:18:39.390 --> 00:18:44.640 align:middle line:84%
If it had not hit home with us,
I don\'t know how aware of

00:18:44.640 --> 00:18:49.590 align:middle line:84%
it I would be at this point
and time in my life.

00:18:49.590 --> 00:18:52.870 align:middle line:84%
Pisces, downtown, or you
want to go to the

00:18:52.870 --> 00:18:56.250 align:middle line:90%
California Pizza Kitchen?

00:18:56.250 --> 00:18:57.630 align:middle line:84%
You can\'t reason with
the person.

00:18:57.630 --> 00:18:58.960 align:middle line:84%
You can\'t argue with
the person with

00:18:58.960 --> 00:19:00.720 align:middle line:90%
Alzheimer\'s or dementia.

00:19:00.720 --> 00:19:02.500 align:middle line:90%
You just have to let it go.

00:19:02.500 --> 00:19:04.310 align:middle line:84%
As long as they\'re not
hurting anybody or

00:19:04.310 --> 00:19:06.990 align:middle line:90%
anything, let it go.

00:19:06.990 --> 00:19:09.280 align:middle line:84%
A lot of dealing well with
someone with Alzheimer\'s

00:19:09.280 --> 00:19:11.990 align:middle line:84%
disease or memory problems is
learning to modulate how you

00:19:11.990 --> 00:19:15.620 align:middle line:84%
behave around them, because
they\'re living their reality.

00:19:15.620 --> 00:19:19.450 align:middle line:84%
I wouldn\'t want to be alone
going through this.

00:19:19.450 --> 00:19:24.000 align:middle line:84%
My children have been great
anchors for me.

00:19:24.000 --> 00:19:27.990 align:middle line:84%
And they\'ve come at times when
I\'ve felt very low, and

00:19:27.990 --> 00:19:29.240 align:middle line:90%
they\'ve boosted my feelings.

00:19:29.240 --> 00:19:33.310 align:middle line:90%


00:19:33.310 --> 00:19:34.460 align:middle line:90%
They\'re a bridge for me.

00:19:34.460 --> 00:19:37.330 align:middle line:84%
They\'re a bridge for me over
muddy water and troubled water

00:19:37.330 --> 00:19:42.140 align:middle line:84%
at times when I feel
lost sometime.

00:19:42.140 --> 00:19:46.110 align:middle line:84%
My father lives with my mother
24 hours a day, basically, and

00:19:46.110 --> 00:19:48.100 align:middle line:84%
that\'s the most difficult
thing, because he

00:19:48.100 --> 00:19:49.730 align:middle line:90%
doesn\'t get time off.

00:19:49.730 --> 00:19:52.520 align:middle line:84%
And for us, he\'s the
primary caregiver.

00:19:52.520 --> 00:19:57.390 align:middle line:84%
For us as being a support to
him, I mean we work full time,

00:19:57.390 --> 00:20:02.260 align:middle line:84%
and we have our individual
lives.

00:20:02.260 --> 00:20:07.650 align:middle line:84%
The mere fact that I didn\'t
have help then, I didn\'t

00:20:07.650 --> 00:20:10.000 align:middle line:90%
understand what was going on.

00:20:10.000 --> 00:20:15.160 align:middle line:84%
I just thought he was being
cantankerous, because he was a

00:20:15.160 --> 00:20:17.520 align:middle line:90%
little bit older than I was.

00:20:17.520 --> 00:20:21.260 align:middle line:84%
And I just thought he was
going through a change.

00:20:21.260 --> 00:20:23.030 align:middle line:84%
I didn\'t really know
what was going on.

00:20:23.030 --> 00:20:29.360 align:middle line:84%
When a person\'s spouse is
affected by this illness, and

00:20:29.360 --> 00:20:32.645 align:middle line:84%
your soul mate that you expected
to grow old with, you

00:20:32.645 --> 00:20:36.180 align:middle line:84%
can no longer communicate
with, is affected by

00:20:36.180 --> 00:20:40.190 align:middle line:84%
Alzheimer\'s disease, you feel
that you\'re just out there

00:20:40.190 --> 00:20:44.110 align:middle line:84%
alone, and there\'s no one
or no way to get help.

00:20:44.110 --> 00:20:47.720 align:middle line:84%
But once a family member comes
to a support group and meets

00:20:47.720 --> 00:20:50.520 align:middle line:84%
other people who are
experiencing some of the same

00:20:50.520 --> 00:20:53.920 align:middle line:84%
concerns, and have some of the
same needs that they have,

00:20:53.920 --> 00:20:55.850 align:middle line:84%
then they realize they\'re
not there alone.

00:20:55.850 --> 00:21:00.580 align:middle line:84%
And it really helps them to
maintain their own saneness.

00:21:00.580 --> 00:21:05.650 align:middle line:84%
And you need to help to help
control you, to control him.

00:21:05.650 --> 00:21:09.720 align:middle line:84%
So yes, the community needs
to be aware of it.

00:21:09.720 --> 00:21:13.080 align:middle line:84%
And they need to know the
seriousness of it, because

00:21:13.080 --> 00:21:14.960 align:middle line:90%
it\'s a serious disease.

00:21:14.960 --> 00:21:16.625 align:middle line:84%
And they need to be
made aware of the

00:21:16.625 --> 00:21:17.350 align:middle line:90%
fact that it is serious.

00:21:17.350 --> 00:21:19.740 align:middle line:90%
It\'s nothing to play with.

00:21:19.740 --> 00:21:23.650 align:middle line:84%
They need to know, yeah, this is
happening, and I\'ve got to

00:21:23.650 --> 00:21:27.690 align:middle line:84%
do the best I can with it, and
I can\'t do it by myself.

00:21:27.690 --> 00:21:30.000 align:middle line:84%
We\'re getting ready to go out,
you know, look good.

00:21:30.000 --> 00:21:30.760 align:middle line:90%
Wait a minute.

00:21:30.760 --> 00:21:34.190 align:middle line:84%
OK, we\'re going to
a restaurant.

00:21:34.190 --> 00:21:41.330 align:middle line:84%
You need friends, family,
outside help and care from

00:21:41.330 --> 00:21:42.940 align:middle line:90%
someone other than yourself.

00:21:42.940 --> 00:21:44.860 align:middle line:90%
You can\'t do it all.

00:21:44.860 --> 00:21:51.230 align:middle line:90%


00:21:51.230 --> 00:21:53.790 align:middle line:84%
Caregivers themselves experience
a lot of illness.

00:21:53.790 --> 00:21:54.980 align:middle line:90%
They lose work time.

00:21:54.980 --> 00:21:56.112 align:middle line:84%
They\'ve got to lose work
time to bring to

00:21:56.112 --> 00:21:58.330 align:middle line:90%
the clinic the person.

00:21:58.330 --> 00:21:59.250 align:middle line:90%
They get stressed out.

00:21:59.250 --> 00:22:01.025 align:middle line:84%
They get ill from some
other sickness.

00:22:01.025 --> 00:22:03.910 align:middle line:90%


00:22:03.910 --> 00:22:06.240 align:middle line:84%
It\'s a continuing abyss
treating two patients.

00:22:06.240 --> 00:22:08.360 align:middle line:84%
That\'s one of the sayings of the
Alzheimer\'s Association.

00:22:08.360 --> 00:22:10.760 align:middle line:84%
You have the person with
Alzheimer\'s disease or memory

00:22:10.760 --> 00:22:13.510 align:middle line:84%
problems, and you have the
caregiver who\'s stressed

00:22:13.510 --> 00:22:16.040 align:middle line:90%
beyond belief.

00:22:16.040 --> 00:22:16.410 align:middle line:90%
OK.

00:22:16.410 --> 00:22:16.770 align:middle line:90%
All right.

00:22:16.770 --> 00:22:17.510 align:middle line:90%
Thanks, Karen.

00:22:17.510 --> 00:22:18.190 align:middle line:90%
You sure?

00:22:18.190 --> 00:22:19.100 align:middle line:90%
Yeah, I\'m OK.

00:22:19.100 --> 00:22:23.440 align:middle line:84%
I\'ve been in the hospital twice,
and both times it was

00:22:23.440 --> 00:22:25.990 align:middle line:90%
attributed to stress.

00:22:25.990 --> 00:22:33.280 align:middle line:84%
The first time was when he was
still home, and I was just

00:22:33.280 --> 00:22:38.020 align:middle line:84%
having these pains, like, I
thought it was heart attack.

00:22:38.020 --> 00:22:40.810 align:middle line:84%
And my daughter and them carried
me to the hospital,

00:22:40.810 --> 00:22:44.190 align:middle line:84%
and they did a test with the
heart, the dye and everything.

00:22:44.190 --> 00:22:46.890 align:middle line:84%
And the doctor said
it was stress.

00:22:46.890 --> 00:22:49.520 align:middle line:84%
Lots of time, Alzheimer\'s in
some settings, the person may

00:22:49.520 --> 00:22:52.170 align:middle line:84%
be sort of calm, because they\'re
just floating along

00:22:52.170 --> 00:22:53.440 align:middle line:90%
without a memory.

00:22:53.440 --> 00:22:54.870 align:middle line:84%
And it\'s the caregiver
who\'s stress-crazy.

00:22:54.870 --> 00:22:57.660 align:middle line:84%
Do you remember when you lost
that this morning and

00:22:57.660 --> 00:22:58.880 align:middle line:90%
couldn\'t find it?

00:22:58.880 --> 00:22:59.960 align:middle line:90%
Lost what?

00:22:59.960 --> 00:23:00.620 align:middle line:90%
The ring.

00:23:00.620 --> 00:23:04.280 align:middle line:90%
I didn\'t lose it.

00:23:04.280 --> 00:23:05.060 align:middle line:90%
You found it?

00:23:05.060 --> 00:23:05.960 align:middle line:90%
I found it.

00:23:05.960 --> 00:23:07.550 align:middle line:90%
No, I didn\'t lose it.

00:23:07.550 --> 00:23:09.610 align:middle line:84%
OK, you don\'t remember
that you lost it?

00:23:09.610 --> 00:23:11.150 align:middle line:84%
You remember that you
lost that yesterday?

00:23:11.150 --> 00:23:12.460 align:middle line:90%
No, I had it in my pocket.

00:23:12.460 --> 00:23:15.090 align:middle line:90%


00:23:15.090 --> 00:23:16.440 align:middle line:90%
You really believe that?

00:23:16.440 --> 00:23:18.140 align:middle line:90%
No, I know that.

00:23:18.140 --> 00:23:18.565 align:middle line:90%
OK.

00:23:18.565 --> 00:23:20.320 align:middle line:90%
That\'s where I put it.

00:23:20.320 --> 00:23:21.750 align:middle line:84%
That\'s where you always
put them, huh?

00:23:21.750 --> 00:23:23.310 align:middle line:90%
In my pocket.

00:23:23.310 --> 00:23:30.120 align:middle line:84%
Because of the stress that the
caregivers put on themselves,

00:23:30.120 --> 00:23:34.460 align:middle line:84%
I think, even though I lose
it once in a while, if you

00:23:34.460 --> 00:23:38.140 align:middle line:84%
constantly lose it, it
has to be a drain on

00:23:38.140 --> 00:23:39.520 align:middle line:90%
your body on yourself.

00:23:39.520 --> 00:23:41.830 align:middle line:90%
It has to be something that\'s

00:23:41.830 --> 00:23:44.540 align:middle line:90%
detrimental to your own health.

00:23:44.540 --> 00:23:47.250 align:middle line:90%
Cleo, do you love me?

00:23:47.250 --> 00:23:51.100 align:middle line:84%
What happens too often is that
person who\'s taking care of a

00:23:51.100 --> 00:23:53.720 align:middle line:90%
loved one suffers.

00:23:53.720 --> 00:23:56.300 align:middle line:90%
Often, their health declines.

00:23:56.300 --> 00:24:00.770 align:middle line:84%
Certainly, their emotional
stability declines.

00:24:00.770 --> 00:24:05.900 align:middle line:84%
They are worn out, because it is
a tremendous job to, first

00:24:05.900 --> 00:24:08.050 align:middle line:84%
of all, watched a loved
one decline as they

00:24:08.050 --> 00:24:09.680 align:middle line:90%
will with this disease.

00:24:09.680 --> 00:24:15.570 align:middle line:84%
And secondly, to take care of
that person almost 24-7.

00:24:15.570 --> 00:24:19.590 align:middle line:84%
It can be very stressful, and
the only thing that you have

00:24:19.590 --> 00:24:23.840 align:middle line:84%
to look for is that, there\'s a
chance I will die before she

00:24:23.840 --> 00:24:26.380 align:middle line:84%
does, and who\'s going
to take care of her?

00:24:26.380 --> 00:24:30.710 align:middle line:84%
And that is the thing
that affects

00:24:30.710 --> 00:24:32.720 align:middle line:90%
your day-to-day thinking.

00:24:32.720 --> 00:24:35.880 align:middle line:84%
And you don\'t want to think that
way, but it\'s possible

00:24:35.880 --> 00:24:38.700 align:middle line:84%
you he could be standing there
crying over where\'s Joe gone.

00:24:38.700 --> 00:24:41.610 align:middle line:90%


00:24:41.610 --> 00:24:43.550 align:middle line:90%
She\'ll be all right.

00:24:43.550 --> 00:24:47.890 align:middle line:84%
The girls will take
care of you.

00:24:47.890 --> 00:24:49.320 align:middle line:90%
Be here for her.

00:24:49.320 --> 00:24:55.540 align:middle line:84%
We\'ve been married 52 years
and I have to be for her.

00:24:55.540 --> 00:25:00.330 align:middle line:84%
And by all means, just continue
to pray that God will

00:25:00.330 --> 00:25:02.390 align:middle line:84%
give you the strength to
deal with what you

00:25:02.390 --> 00:25:04.670 align:middle line:90%
have to deal with.

00:25:04.670 --> 00:25:07.670 align:middle line:90%
That\'s just not easy.

00:25:07.670 --> 00:25:11.630 align:middle line:84%
We are not immune from this
disease, and right now, you

00:25:11.630 --> 00:25:15.080 align:middle line:84%
find more African-Americans
with it than you do in any

00:25:15.080 --> 00:25:17.030 align:middle line:90%
other nationality.

00:25:17.030 --> 00:25:21.570 align:middle line:84%
You owe it to your father and
mother to be there for them,

00:25:21.570 --> 00:25:24.860 align:middle line:84%
because they were there for you
when you didn\'t even know

00:25:24.860 --> 00:25:27.570 align:middle line:90%
what was going on in life.

00:25:27.570 --> 00:25:32.550 align:middle line:84%
Advice is to look way ahead,
know what\'s coming.

00:25:32.550 --> 00:25:39.680 align:middle line:84%
And then for the present, just
accept what it is, seek help.

00:25:39.680 --> 00:25:41.680 align:middle line:90%
Get some help if you can.

00:25:41.680 --> 00:25:43.600 align:middle line:84%
Don\'t try to do it
by yourself.

00:25:43.600 --> 00:25:45.700 align:middle line:90%
It will kill you.

00:25:45.700 --> 00:25:49.200 align:middle line:84%
This research could very well
assist people in slowing down

00:25:49.200 --> 00:25:53.160 align:middle line:84%
the progression of such
a dreaded disease.

00:25:53.160 --> 00:25:56.550 align:middle line:84%
Alzheimer\'s disease is not a
death sentence, and we very

00:25:56.550 --> 00:25:59.050 align:middle line:84%
much frequently communicate
that to

00:25:59.050 --> 00:26:01.270 align:middle line:90%
patients and their families.

00:26:01.270 --> 00:26:03.200 align:middle line:84%
We have to communicate
to patients this

00:26:03.200 --> 00:26:04.920 align:middle line:90%
is a physical problem.

00:26:04.920 --> 00:26:09.180 align:middle line:84%
Learn as much about the
disease as you can.

00:26:09.180 --> 00:26:14.960 align:middle line:84%
There is a great need in the
African-American community for

00:26:14.960 --> 00:26:20.800 align:middle line:84%
information, for education about
Alzheimer\'s disease.

00:26:20.800 --> 00:26:22.050 align:middle line:84%
[MUSIC - NAKIA MAGAZINE,
\"A DISTANT VOICE\"]

00:26:22.050 --> 00:28:24.995 align:middle line:90%